Gratitude is the Attitude

Epilepsy Talk

A wise woman once told me:

“When you wake up in the morning — before you get out of bed — think of 5 (or 10!) things that you’re really grateful for.”

(I think 10 is a bit of a stretch.)

That simple advice, changed my attitude. And my life.

We have so much to be grateful for, especially me:

1. For your support, strength and caring…

2. Your smart, sensitive advice…

3. The compassion you share so generously…

4. All of your kind, wise encouragement…

5. Your never-ending love and dedication…

You are MY godsend…today, tomorrow and always.

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Common Epilepsy Triggers

Epilepsy Talk

Epilepsy affects each person differently. Below is a guide to some common seizure triggers. You may not feel or notice anything in particular. Or you may have triggers which are not mentioned here. Keeping a seizure diary is the most effective way of keeping track of what triggers your seizures.

Reflex Epilepsy

Some people notice that their seizures occur in response to very specific stimuli or situations, as if the seizure is an automatic “reflex.”  In this type of seizure, it occurs consistently in relation to a specific trigger. For example, one type of reflex epilepsy is photosensitive epilepsy where seizures are triggered specifically by flashing lights. Other types of reflex epilepsies can be seizures triggered by the act of reading or by noises. These reflex epilepsies are not common. However, knowing the type of epilepsy and trigger is important information for a correct diagnosis. You can then work on eliminating these triggers whenever possible or find…

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Other Voices — Other Lives

Epilepsy Talk

“There were times I asked myself,
‘Is life really worth living?’
Suicide, now there’s a thought,
But would God be forgiving?”

Ed L.

“There’s something liberating in being expected to fail. No expectations, no explanations. After all, “you’ll never amount to anything,” you’re damaged goods. So you’re free to fall on your face. Or reach for the stars. I did both.”

Phylis J.

“We were locked up and used as a guinea pigs to try medications in the ‘testing stage.’ Believe me, they didn’t hesitate when it came to try untested medication.

There were times I was pumped so full of meds I couldn’t walk straight, and it usually just made my seizures worse…

If I had a seizure, they would give more med’s and lock me in the seclusion room.

Sometimes if I had a seizure in the seclusion room, a nurse or attendant would come in and slap me…

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Person-centred dementia care – what is it?

Rebecca Fuller

Meeting psychological needs (such as someone’s sense of belonging and how they feel about themselves) is at the core of person-centred care, which is often viewed as the best practice for offering care and support to individuals living with dementia.

Person-centred dementia care seeks to enhance the well-being and empowerment of people living with dementia, regardless of their cognitive functioning. In adopting a person-centred approach to dementia care, it can lead to an enhanced quality of life and increased sense of well-being for both caregivers and individuals living with dementia.

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Watch “Keith Olbermann Prophecy 7 years ago” on YouTube

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Anti-Epilepsy Drugs Lose Effectiveness Over Time…

Epilepsy Talk

It may be the dose prescribed…the type of epilepsy you have…even something as simple as your age or weight. But research shows that, over time, the effectiveness of your anti-epilepsy drug may decline.

Almost all first, second and third-generation epilepsy drugs lose their efficacy after prolonged treatment.

Perhaps it’s because your metabolism builds up a tolerance to the drug. And ramping up the dosage can work.

Or it may be a functional tolerance where your brain receptors have become resistant to the drug. In that case, a change in medications may help. But whatever the cause, you’re not alone…

Patients showing tolerance to traditional drugs

A critical review by Dr. Wolfgang Loscher and Dr. Dieter Schmidt shows that repeated administration of anti-epileptic drug (AED) therapy has diminishing results in preventing seizures in epileptic patients.

In clinical trials, the number of patients remaining seizure-free declines over time with prolonged treatment.

This review explores…

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Epilepsy Related Conditions

Epilepsy Talk

In chronic conditions, such as epilepsy, the coexistence of more than one illness in a patient is the rule rather than the exception…

Men and women with epilepsy have a two-to five-fold increase in the occurrence of conditions, such as migraine, cerebrovascular and cardiovascular disorders, along with gastrointestinal disorders, pulmonary disorders, dementia, chronic fatigue, mood disorders, anxiety, and personality disorders.

The type and prevalence of conditions is largely age dependent.  For example, among epilepsy patients, asthma is common among the young, while cardiovascular diseases and stroke are prevalent in older individuals—but both occur more frequently than in the general population.

Below is a sampling of some of the conditions which are related (but not necessarily caused) by epilepsy…

Epilepsy and Heart Disease

The neural activity that accompanies seizures has long been known to affect cardiac functioning. But in patients with nonconvulsive types of epilepsy, these secondary symptoms may be…

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